THE YEAR CLEARANCE

I wanted to share my great news on Zoe.  I feel like we hit the lottery.  We had her follow up cardiology appointment (8 months post op).   She had an EKG done yesterday and they felt they didn’t even need to do an echo, she looked and sounded great.  We actually got the one YEAR clearance, to not come back to see them until next May.  All in all, since her GI is repaired and her heart is now repaired (except for some weird anomalies and location of her heart) she should lead a very normal and healthy life.  We just have to worry about her polysplenia (her spleens do not work, which means she can’t fight off infections ).  She is sick every other week and hopefully with the start of the warmer weather, it will lessen.  I do know that once our son starts pre-K in the fall, we will have some hospital stays, but to know that the doctors are no longer worried about her heart, makes everything seem so much better and easier.  Although Heterotaxy Syndrome is very rare, we have been blessed with a lesser complex case.  To say I’m excited is an understatement.

 

So once she can build immunities in the next few years, she should be a very normal little girl who hopefully will not have any more hospital stays J  I know things can change, but I'm going on the positive route that our Zoe bean, who has overcome so much (as well as her parents), is going to be just fine!

 

This blog was and has been so extremely therapeutic for me.  I can't even tell you how many dark days I've had while I was pregnant with her, and during her first year of life.   I never intended on reaching so many people with our story, nor did I anticipate meeting some extremely wonderful people throughout my journey.  The Heterotaxy Community is near and dear to my heart.  You have an instant connection with these parents.  You know the emotions they are going through. 

 

Going from two-three doctor appointments a week for months on end, to now having the year clearance for Pediatric Surgery (GI) and Cardiology, is just truly amazing.  She just turned 15 months, I never thought we'd get to this point this quickly.   

 

With that, thank you all for all of your support, prayers and great thoughts for our family.  I will update the blog and facebook page when I can or if anything new pops up about Zoe, but for now, I'm just going to enjoy my family and have fun this summer!!!!!!!!!!!!!