Heterotaxy Syndrome...

We have come to find out that Heterotaxy Syndrome is something that we can't take lightly. After discussing this again with our fetal cardiologist today, she does suspect that Zoe has this due to the anatomy of her heart.  She has vessels in weird places, which raises their concern.  I've decided to also get a 2nd opinion. I've been in contact with a Boston Cardiologist who's through Boston Children's Hospital.  They are #1 in the pediatric cardiology world.

After researching and posting on chat boards that pertain to baby's heart defects, I've learned that we need to make sure we feel comfortable with the hospital for a suspected Heterotaxy Syndrome child.  I'm obtaining my medical records and sending it to one of the doctors in Boston, as he said he would take a look and give me his opinion.  Her viable organs are at risk at this point, and we will not know anything until after she's born.

After reading horrible stories and blogs about children with heterotaxy syndrome, I need this for my own sanity.  If anything was ever to go wrong, I think I would have regret.  Boston is a plane ride away, I need to do whats best for my baby.

So with that, until our next check fetal check up or until our 2nd opinion is reported back before mid November, there will be new news.  Other than that, its just a waiting game...