One Hurdle Overcome, Now a handful more to go...

I woke up this morning with a huge smile on my face.  Again, thank you for all your continued prayers.  But please note, just because we got normal FISH results on the amino, doesn't mean everything is ok.  Zoe still has alot of heart defects and a bowl obstruction, all of which are very serious.  It is probable she has some sort of syndrome, and it may very well be Heterotaxy (again this is the rare syndrome, 1 out of a million). Heterotaxy is still very scary and alot of children die from this syndrome.  The rest of the amino results should be in about 10 days, and then the more extensive research on our little girl will take a few weeks (the Mircoarray Analysis and Noonan testing).

In my heart of hearts, I do believe she will be ok no matter what syndrome she may have.  This next year will be an uphill battle for sure.  I think the sense of peace I felt on Saturday morning was her telling me "mom, I'm going to be ok".  I cannot express to you the feeling that overcame me, but it was such a weird sensation.

I forgot to add in yesterday's post that I spoke with Dr. Gerald Marx from Boston about our reports and fetal echos.  I knew he would say that since he only had the 20 and 22 week scans that it would be hard for him to determine everything, however he did suspect everything that has been found thus far.  He reassured me that we're in good hands dealing with Northwestern and Children's Memorial.  He knows of our Fetal Cardiologist and our heart surgeon.   He was extremely nice and answered all my questions.  He wants me to keep in touch with him to let him know how our little girl is doing. 

I'll leave you with this...

Brave Little Soul

Not too long ago in Heaven there was a little soul who took wonder in observing
the world. He especially enjoyed the love he saw there and often expressed this
joy with God. One day however the little soul was sad, for on this day he saw
suffering in the world. He approached God and sadly asked, "Why do bad things
happen; why is there suffering in the world?" God paused for a moment and
replied, "Little soul, do not be sad, for the suffering you see, unlocks the
love in people's hearts." The little soul was confused. "What do you mean," he
asked. God replied, "Have you not noticed the goodness and love that is the
offspring of that suffering? Look at how people come together, drop their
differences and show their love and compassion for those who suffer. All their
other motivations disappear and they become motivated by love alone." The little
soul began to understand and listened attentively as God continued, "The
suffering soul unlocks the love in people's hearts much like the sun and the
rain unlock the flower within the seed. I created everyone with endless love in
their heart, but unfortunately most people keep it locked up and hardly share it
with anyone. They are afraid to let their love shine freely, because they are
afraid of being hurt. But a suffering soul unlocks that love. I tell you this -
it is the greatest miracle of all. Many souls have bravely chosen to go into the
world and suffer - to unlock this love - to create this miracle for the good of
all humanity."
Just then the little soul got a wonderful idea and could hardly contain himself.
With his wings fluttering, bouncing up and down, the little soul excitedly
replied. "I am brave; let me go! I would like to go into the world and suffer so
that I can unlock the goodness and love in people's hearts! I want to create
that miracle!" God smiled and said, "You are a brave soul I know, and thus I
will grant your request. But even though you are very brave you will not be able
to do this alone. I have known since the beginning of time that you would ask
for this and so I have carefully selected many souls to care for you on your
journey. Those souls will help you create your miracle; however they will also
share in your suffering. Two of these souls are most special and will care for
you, help you and suffer along with you, far beyond the others. They have
already chosen a name for you". God and the brave soul shared a smile, and then
embraced.
In parting, God said, "Do not forget little soul that I will be with you always.
Although you have agreed to bear the pain, you will do so through my strength.
And if the time should come when you feel that you have suffered enough, just
say the word, think the thought, and you will be healed." Thus at that moment
the brave little soul was born into the world, and through his suffering and
God's strength, he unlocked the goodness and love in people's hearts. For so
many people dropped their differences and came together to show their love.
Priorities became properly aligned. People gave from their hearts. Those that
were always too busy found time. Many began new spiritual journeys, some
regained lost faith - many came back to God. Parents hugged their children
tighter. Friends and family grew closer. Old friends got together and new
friendships were made. Distant family reunited, and every family spent more time
together. Everyone prayed. Peace and love reigned. Lives changed forever. It was
good. The world was a better place. The miracle had happened. God was pleased

"He heals the brokenhearted and binds up their wounds"

Psalm 147:3