So today we saw Dr. Gotteiner for our fetal echo check up. I went in with a sense of relief and positiveness since we got our FISH results last Monday. I've been praying so much and talking to God that I had hopes that nothing new was going to pop up.
Sure enough, no new news! Maybe we're on a new pattern? Who knows, but I'll take it. She didn't think she saw the AV Canal Defect anymore, but we won't know 100% until Zoe is born. This is the defect that she would need open heart surgery either at 4/5 months or 18 months. Mike and I were beaming ear to ear. She still saw the holes and the aortic stenosis (smaller aorta chamber). Basically, its not growing. She computed all the measurements and its in the 5/10th percentile while the pulmonary chamber is in the 90/95th percentile. So obviously its very small. It could be that there is a Coarctation of the Aorta (which they suspected weeks ago but is too hard to determine in utero) or that may not be there and its a build up of tissue. The only thing that is scary is that if its not the Coarctation, they really can't do anything with the size of the aortic chamber. They can try and take out the tissue in hopes to have it grow, but they can't fix that part of the heart. So it could mean that she would have to have numerous heart surgeries to fix this as its just a temporary fix. I didn't want my baby girl to have heart surgery the first week of life, but I would rather have the Coarctation of the Aorta than not. I can't imagine having the scare of whether the chamber is growing properly each year, nor do I want that on the back of my mind of knowing it could be life threatening. Her beating of her heart is on the low normal side, nothing too alarming, but still worrisome.
She asked me if my OB had sent me to a high risk OB or given me steroids for her lung development. I told her no to both and that it was brought up last week but nothing was given to me. She was very concerned since I have so much fluid. She was calling my OB today to tell him she feels I need to be given the steroids. I see my OB on Friday. She also said we need to keep Zoe in until 34/35 weeks because if not, her lungs won't be developed and they can't work on the heart. The lungs and heart are directly related. I'm so uncomfortable, get winded so easily, can't bend, but I'd rather be in pain then have the chance of her come out any earlier.
Dr. Gotteiner reminded us that Zoe will only spend a short time at the NICU at Prentice, basically just to get her ready to be transferred. I will not be holding my baby girl for very long while I recover at Prentice. This saddens me and I know it'll be a whole new feeling when she's actually here.
So with that, really nothing new to report since things can't be fully determined until birth. We should get the rest of our amino results this week.
We just need continued prayers, now to keep her "cooking" a bit longer, and that the aortic chamber starts growing.
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