I turned on the Christmas music today. Trying to make myself in a better mood. The long awaited and dreaded phone call with Dr. Backer and Dr. Russell's surgery coordinator happened about an hour ago. Her surgery is scheduled for September 25th. There's a chance Zoe will be bumped only if a baby or child needs a heart transplant. I turn 32 on September 23rd, not how I wanted to spend my birthday weekend. But maybe it'll bring some good luck.
I feel like I've been on edge since last Thursday. I'm not sleeping very well, I'm loaded up on coffee so I feel jumpy. My eyes appear swollen from having bouts of crying spells. At least I have a date and now can mentally prepare for this.
Thank you all for the continued support. I haven't been myself in nearly a week. I'm sure I won't be until she's at home with me after surgery.
Another one of Zoe's Heterotaxy Buddies has passed away. Baby Pierce passed away in his sleep last night unexpectedly. He has gone through so much and his mother has endured so much pain over the course of this past year. She is truly an inspiration to most of us Heterotaxy moms. He just turned 1 at the end of July. This Heterotaxy life is so heart breaking.
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