Another upcoming appointment...

Last week we received a message from Children's Memorial Hospital regarding a follow up appointment for Zoë.  Mike called me and said "I thought we didn't have Peds or Cards until August".  He's right, we don't.  I called Children's to see if there was a mistake and they said her appointment is actually with the Neonatalogists.  Another doctor visit = another long day.  We had no idea that we had to follow up with the Neonatalogists.  Another doctor to add to our plate.  Between her pediatrician, therapist, pediatric surgery and cardiologist, we just weren't expecting another set of doctors (and visits).  They want to make sure she's on track developmentally. 

I got wind of the length of time this appointment was from another mom I met in the NICU (thank goodness for facebook).  She forewarned me it was a good 4-5 hour appointment.  I'm dreading this for Zoë.  Not to mention she has her physical therapy appointment on Wednesday too.  I just hate having her checked and worked on so many days in a row.  I know its for her best interest but its just hard seeing your daughter go through all this. 

I'll be curious as to what they say about her torticollis. They should be amazed at how much she's growing and gaining.  She's turning into a little chubster!  And I hope they see how strong of a little girl she is physically.  She can hold her head up so steadily when she's picked up and she's doing great on her tummy time (almost rolled over this past weekend from back to belly).

So here's hoping she's on track like any other 3 month old baby.... Zoë wouldn't mind some more prayers and good thoughts either. :)

I had a fantastic Mother's Day with my family. I couldn't have asked for a better day (and fantastic weather). My husband spoiled me. I think most of us parents wonder if we're doing a great job. You all have expressed since we found out about Zoe's diagnosis, then her birth and so on...about how I'm such a strong mother, that you don't know if you could do it, etc. I could not be half the mother I am today without all the love and support you all have given me and my family. So Thank You!

Remember when I met another Heterotaxy mother at Children's when Zoë was in the NICU?  (which is so rare, considering Heterotaxy is a rarity).  Well she was interviewed by WGN news.  Her daughter, Hallie, has very similar defects like Zoë.  I thought I would share the newsclip. 

I'll update the blog with her appointment later this week.